Resources

Following is a list of valuable resources and websites for Black people living with dementia and their caregivers.

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AARP African American Caregiving Resource Center

• Website: www.aarp.org/caregiving

• Offers practical caregiving guides tailored to Black families

 

African American Alzheimer’s and Wellness Association

• Website: www.africanamericanalz.org/

• Focuses on providing Black communities with dementia education, advocacy and caregiver support

 

Alzheimer’s Association (AA)

• Website: www.alz.org

• Offers culturally relevant education, support groups and resources for Black families affected by Alzheimer’s and other dementias

 

Black Men’s Brain Health Initiative

• Website: www.mensbrainhealth.org/

• Focuses on brain health education and research tailored to Black men

 

Dementia Action Alliance (DAA) – African American Dementia Resources

• Website: www.daanow.org

• Offers peer-led support and resources to empower people living with dementia and their caregivers

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Dementia Spring

• Website: https://dementiaspring.org/

•  Spotlights artists from diverse backgrounds to raise awareness, promote dignity and create a greater sense of belonging for individuals experiencing dementia

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​Expose Dementia

• Website: https://exposedementia.org/

• Promotes awareness and early intervention and reduces the stigma surrounding dementia within the Black community through storytelling and creative arts

 

Hilarity for Charity

•  Website: https://wearehfc.org/care-grants/ 

• Offers respite grants to cover the cost of professional, in-home or Adult Day Center care

 

National Caucus and Center on Black Aging (NCBA)

• Website: www.ncba-aging.org

• Provides legal and financial planning resources for Black seniors and their caregivers

 

National Institute on Aging

• Website: www.nia.nih.gov

• Provides science-based information on dementia, caregiving and clinical trials for Black communities

 

The Balm in Gilead – Brain Health Center for African Americans

• Website: https://brainhealthcenterforafricanamericans.org/

• Offers faith-based initiatives to promote brain health and support caregivers in Black churches

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Trial Match

• Website: https://trialmatch.alz.org/en-US/

• Offers a free matching service that connects individuals living with cognitive impairment, Alzheimer’s disease or another dementia, caregivers and healthy participants with current research studies. 

 

U.S. Department of Health and Human Services

• Website: www.hhs.gov/aging/index.html

• Provides information about caregiver resources, Social Security benefits, Medicare enrollment and Medicaid coverage

 

UsAgainstAlzheimer’s – Center for Brain Health Equity

• Website: https://www.usagainstalzheimers.org/center-brain-health-equity

• Provides research, policy advocacy and culturally-tailored resources for Black families