Resources

Following is a list of valuable resources and websites for Black people living with dementia and their caregivers.

​

AARP African American Caregiving Resource Center

• Website: www.aarp.org/caregiving

• Offers practical caregiving guides tailored to Black families

 

African American Alzheimer’s and Wellness Association

• Website: www.africanamericanalz.org/

• Focuses on providing Black communities with dementia education, advocacy and caregiver support

 

Alzheimer’s Association (AA) – African American Outreach

• Website: www.alz.org

• Offers culturally relevant education, support groups and resources for Black families affected by Alzheimer’s and other dementias

 

Black Dementia Minds (BDM)

• Website:  dementiaminds.org/series/black-dementia-minds/ 

• A support group led by and for Black individuals living with dementia

 

Black Men’s Brain Health Initiative

• Website: www.mensbrainhealth.org/

• Focuses on brain health education and research tailored to Black men

 

Dementia Action Alliance (DAA) – African American Dementia Resources

• Website: www.daanow.org

• Offers peer-led support and resources to empower people living with dementia and their caregivers

​

Hilarity for Charity

•  Website: https://wearehfc.org/care-grants/ 

• Offers respite grants to cover the cost of professional, in-home or Adult Day Center care

 

National Black Nurses Association (NBNA) – Brain Health Education

• Website: www.nbna.org

• Offers culturally competent nursing support for Black families navigating dementia care

 

National Caucus and Center on Black Aging (NCBA)

• Website: www.ncba-aging.org

• Provides legal and financial planning resources for Black seniors and their caregivers

 

National Institute on Aging – Alzheimer’s and Related Dementias

• Website: www.nia.nih.gov

• Provides science-based information on dementia, caregiving and clinical trials for Black communities

 

The Balm in Gilead – Brain Health Center for African Americans

• Website: www.balmingilead.org

• Offers faith-based initiatives to promote brain health and support caregivers in Black churches

 

U.S. Department of Health and Human Services

• Website: www.hhs.gov/aging/index.html

• Provides information about caregiver resources, Social Security benefits, Medicare enrollment and Medicaid coverage

 

UsAgainstAlzheimer’s – Center for Brain Health Equity

• Website: www.usagainstalzheimers.org

• Provides research, policy advocacy and culturally-tailored resources for Black families