Who We Are
Black families deserve clear information, culturally relevant guidance and compassionate support when facing dementia.
Dementia in Black was created to help individuals, caregivers, communities and organizations better understand how dementia affects Black families and what it takes to respond with knowledge, dignity and care. Our work brings together healthcare expertise, public education, advocacy and powerful storytelling to help people feel more informed, more supported and less alone.
We believe conversations about dementia in the Black community must be honest, practical and accessible. We also believe Black families deserve experts who understand both the science and the lived realities.
Meet Lisa Brownlee Johnson, NP
Clinical Expert | Dementia Educator | Advocate for Black Families
Lisa Brownlee Johnson is a nurse practitioner, Certified Dementia Practitioner and trusted educator with extensive experience supporting older adults and families. Her work is grounded in compassionate care, practical guidance and a deep understanding of the challenges families face when dementia becomes part of everyday life.
With years of experience in nursing and primary care, Lisa helps individuals and families better understand dementia, recognize warning signs, navigate caregiving decisions and advocate for quality care. She is especially passionate about helping Black families access culturally responsive information and support.
Lisa’s voice is trusted because it combines clinical expertise with clarity, empathy and real-world understanding. She helps audiences move beyond fear and confusion so they can make informed decisions and care for loved ones with greater confidence.
Topics Lisa can address include:
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Caregiving strategies for families
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Health equity and dementia in the Black community
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How to advocate for quality care
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Practical guidance for navigating diagnosis and support systems
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Understanding dementia and its warning signs
Meet Linnie S. Carter, Ph.D., APR
Speaker | Author | Strategist | Advocate
Linnie S. Carter is a speaker, author and strategist who is committed to raising awareness about dementia in the Black community. Her work brings together personal experience, public education and community-centered advocacy to help families and organizations have stronger, more informed conversations about dementia.
Dr. Carter is known for making complex topics understandable, engaging and actionable. She speaks with honesty, warmth and conviction about the realities families face, the need for culturally relevant education and the importance of greater awareness across churches, community organizations, healthcare spaces and public life.
Her commitment is shaped by both professional expertise and personal experiences. Through speaking, writing and collaboration, she helps audiences better understand how dementia affects Black individuals, caregivers and communities and what can be done to respond with compassion and action.
Topics Dr. Carter can address include:
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Caregiving, advocacy and family communication
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Community awareness and education
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Faith, culture and conversations about aging
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How organizations can better support Black families impacted by dementia
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Impact of Alzheimer’s on the Black community
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Protecting brain health in the Black community
Why Our Voices Matter
Dementia does not affect all communities in the same way. Black families often face disparities in diagnosis, access to care, trust in healthcare systems and the availability of culturally relevant support. Too often, families are left to navigate difficult decisions without enough information, understanding or guidance.
That is why our work matters.
We bring a rare combination of clinical insight, communication expertise, lived experience and community-centered advocacy. We speak to families, caregivers, nonprofits, healthcare organizations, churches, colleges and community groups that want trusted voices on this issue.
We do not believe in vague conversations or one-size-fits-all messaging. We believe in practical education, honest dialogue and support that reflects the lived realities of Black families.
Who We Serve
We serve:
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Black individuals and families affected by dementia
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Caregivers and loved ones
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Churches and faith communities
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Colleges, universities and public-serving institutions
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Conferences and event organizers seeking expert speakers
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Healthcare providers and community health programs
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Nonprofits and advocacy organizations
Bring trusted expertise to your audience.
Whether you are planning a conference, community event, workshop, training session or public conversation, Dementia in Black offers informed, culturally relevant perspectives that educate and inspire.